twitter.com/davidintherain/status/1072093902755250178
your balance system does not work, you can’t see or hear properly, you get funny looks for wearing sunglasses. Your gate is wide to keep balance as best you can. You may stagger or fall… people assume your drunk!
When you don’t respond or move for a car your ignorant… no you just can’t hear!
Lip reading is exhausting. Withdrawal is easier. Staying indoors to avoid triggering your condition is easier.
That’s not even going into the sickness with your stomach on a full spin cycle and the pressure and pain in your head and ears. The tinnitus is the easy bit!
Walk in our shoes! Any takers? …
Published by Ménières Suicide or Survivor
Loving passionate Mother of two trying navigate my way through a new kind of life I find myself in through no fault of my own.
I suffer with bilateral Ménières, on many medications and tried skull surgery to no good outcome. It’s a living hell. I am a retired primary teacher who had a fantastic career.
How do people we Ménières live with this horrific sentence? That is what my site is about... me, my journeys before...during ... now! My coping strategies and not coping...
It’s a rollercoaster, but that’s my life, I never know from one minute I the next how my day will be. Spinny, dizzy, sick, ear pain pressure yes pretty much always, attacks or non. Can I maintain the “I’m ok” face or not.
What I will say, I want to help and support anyone, it’s a lonely and horrible journey. Nobody really understands. Unless you have been there. If I can help one person I will be happy and raise awareness of this debilitating life changing and obliterating condition that is Ménières.
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Ménières Suicide or Survivor 