Author: Ménières Suicide or Survivor

Loving passionate Mother of two trying navigate my way through a new kind of life I find myself in through no fault of my own. I suffer with bilateral Ménières, on many medications and tried skull surgery to no good outcome. It’s a living hell. I am a retired primary teacher who had a fantastic career. How do people we Ménières live with this horrific sentence? That is what my site is about... me, my journeys before...during ... now! My coping strategies and not coping... It’s a rollercoaster, but that’s my life, I never know from one minute I the next how my day will be. Spinny, dizzy, sick, ear pain pressure yes pretty much always, attacks or non. Can I maintain the “I’m ok” face or not. What I will say, I want to help and support anyone, it’s a lonely and horrible journey. Nobody really understands. Unless you have been there. If I can help one person I will be happy and raise awareness of this debilitating life changing and obliterating condition that is Ménières.

#TIREDNESS

Does your condition make you feel more tired?

Do you think you get tired more easily?

Does an episode make you feel more tired, or more fatigued at certain times of the day? What do you do to combat this?

Does anything help?

#menieresdisease #Vestibular

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please comment yourself beneath…

Remember to COPE!

Confident
Optimistic
Positive
Enthusiastic

I wish you all the strength every day to cope with all we face with MD and all hidden illness xx

Tesco Quiet Time… and 🌻 #sunflowerlanyard

16th Feb 2019 Ménières Suicide or Survivor

I decided to find out where and when…

it’s a trial… Saturday morning 9-10am

It’s a start but it’s only in limited stores… AND at the moment it’s about autism only… this needs to be about all chronic and invisible debilitating illness. Vestibular, sensory, pain… the list goes on!

I’m sharing this with you!

Feel free to share and contact…

#invisibleillness

#visability93

Let’s be INDIVISIBLE 🌻

get the support we need to be more independent…

Shopping and menieres

Wear your sunflower 🌻 with pride

11th Feb 201911th Feb 2019 Ménières Suicide or Survivor

Let’s be INDIVISIBLE… make the 🌻globally recognised for invisible disability…

twitter.com/alisonjbrennan/status/1094997846326198272

Me and my support dog!

Wear yours with pride!

Shopping and menieres

Let’s campaign for the sunflower 🌻 lanyard!

9th Feb 20199th Feb 2019 Ménières Suicide or Survivor

To highlight people with an invisible disability!

Let’s be INDIVISIBLE! In public so we are not judged, just justifiably supported!

So if your wearing sunglasses in winter or indoors your not judged, if your looking drunk but your not… if you don’t reply to someone talking… your not ignoring them, you could be deaf!