Thanks for joining me! Please share your experience and your stories with the MD community.(in the comments and hit follow at the bottom for updates) I want to help others. I don’t want this to be just about me! I would like this site to be a way to vent and help and support each other without having to travel to do so!
Thank you, Ali x
life isn’t about waiting for the storm to pass… it’s about learning to DANCE in the rain!
We can’t always choose the music life plays for us… We can choose how we dance to it!
Published by Ménières Suicide or Survivor
Loving passionate Mother of two trying navigate my way through a new kind of life I find myself in through no fault of my own.
I suffer with bilateral Ménières, on many medications and tried skull surgery to no good outcome. It’s a living hell. I am a retired primary teacher who had a fantastic career.
How do people we Ménières live with this horrific sentence? That is what my site is about... me, my journeys before...during ... now! My coping strategies and not coping...
It’s a rollercoaster, but that’s my life, I never know from one minute I the next how my day will be. Spinny, dizzy, sick, ear pain pressure yes pretty much always, attacks or non. Can I maintain the “I’m ok” face or not.
What I will say, I want to help and support anyone, it’s a lonely and horrible journey. Nobody really understands. Unless you have been there. If I can help one person I will be happy and raise awareness of this debilitating life changing and obliterating condition that is Ménières.
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Ménières Suicide or Survivor 
My heart goes out to you. I’m changing my ENT as he has no real empathy and not really done much in 9 years apart from blame my symptoms on my anxiety and treats me like an imbosele and a weak person. He mentions my anxiety every time I see him and I’m not usually thinking about it at the time but he makes me think more about it … He wants me to be more positive now I’ve had an operation to fit a grommet which apparently has gone wrong and of which has now left me with deafness ( I had perfect hearing beforehand ) and could cope before with my tinnitus but now roaring tinnitus and a feeling like an Inflated balloon inside my ear . Yes my balance was bad before but since the op I’m banging into things outside and inside.
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Thank you for your response Karen, I’m so sorry you have had this experience. Gromits are one of the first treatments to try. Have you tried the injections. They may help you. Do not let this ENT doctor get to you, it’s him who is ill informed with this condition by the sounds of things. MD causes much anxiety and kicks in fight and flight which we can’t help. I am always here to support you, I’m having a tough time myself at the moment trying to cope. This is why we need a place of support and sharing what helps! You are not alone. Look at my medications. Let me know where you are… I may know someone in your area! Have you been in tough with the Ménières Society? I will put on a page to ask people to list good consultants in various areas! Just keep going movingly to retrain your brain. Download tinnitus app. Headspace good too( no I’m not sponsored) it helps me. If I can help in any way please ask. Much love Ali x
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An amazing woman keep
adding to your blog it’s damn good reading and supportive to anyone with this debilating illness. Nothing beats experience and she has bucketfuls of that . All my love always . XXX
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