Ménières has for me completely changed my life. I was successful teacher with an amazing career I had worked exceptionally hard to be the best I could be. Now I can not bare to be in or around the school environment. I am no longer the person I once was. This is impossible to come to terms with… so I try to lock it away and embrace what I have now; which isn’t much but dispite the cloud that is Ménières I have to remember there is always a blue sky above the clouds!
Sometimes it’s hard to remember that!
Menieres is such an unpredictable condition you can’t make ridged plans as your condition can change so quickly. So can your anxiety levels. Your fight and flight (like the feeling you get if your attacked or confronted in an argument, or go down a drop on a rollercoaster) kicks in, this level of panic starts as the vestibular system within the ears can’t process the information to the brain because the ears are filled with fluid. Your balance becomes affected thus affecting your abilitiy to process the movement of others, depth perception and noise around you antagonises the vestibular system. If bright lights are thrown into this situation you have a recipe for disaster. This is where Valium (diazepam) is prescribed for patients with active Ménières to control this flight and flight, we feel no effects of the Valium it mearly takes the edge of the anxiety caused by our faulty feedback.
I have been prescribed anti depressants on a few occasions now as I had hit crisis point. Unable to cope with my condition only seeing one way out! (Not living with it anymore) The sad truth is the suicide rate for people with Ménières is very high as there is no cure and no real way of dealing with it. I myself have a very close relationship with my GP surgery and an alert on the system where if I need contact with my doctor I can see or speak immediately. I have found this necessary especially after my failed surgery. Then again recently when I went into yet another downward spiral. This is when I decided to set up this site by way of support and therapy. Although I must admit it’s been tough to do.
I know I’m not on my own in this, if you have very active bilateral Ménières suffering constant attacks, daily spins and imbalance and have limited quality of life then you will understand. I appreciate some people are unilaterally affected and may not suffer in this way, you are very fortunate. But for those out there who are… reach out, don’t suffer alone, you are not!
When you find yourself making plans of how you intend to end your life… you need to seek help immediately! You need to seek help! When I was at crisis point and making plans, I wasn’t talking to anyone… this is the dangerous zone! At that point you have gone past the point of feeling, your numb, too depressed to think or care! I made myself go to the doctor, don’t be feared of loosing your children, don’t be fearful of judgment. Your seeking help. It’s ok. I sought help for my children that’s the only reason. I need to be here for them. I felt terribly guilty for not wanting to be here because of this horrible condition. But how would they feel about me if I did that.
To sum up Ménières causes dreadful feeling of anxiety and depression, no there is no cure, but some days are ok. You have to make the most of them. Embrace the sunshine (going and standing in the sun saved me once when I had made a plan to end my life…) and remember there is a blue sky above those clouds!
You are never alone! Seek help, there is no shame in getting help. You need it…
Ménières Suicide or Survivor 
Hi I’m trying to manage dealing with what I believe is menieres disease, I have little to no quality of life i suffer constant ringing in the ears, reoccurring ear infections constant head pain. I can’t even socialise or live normal life. I was a chef working covernt Garden London 5years, I was on last warning due to not being able to work calling sick not able to get out of bed and would of surely been let go because of that, then covid came and I’m made redundant, still finding working difficult went from full-time work now I’m doing part time and even working part-time is extremely hard for me, I think I can live with my condition only thing that I’m worried about is I know how difficult im finding doing even part time work now and don’t think I’ll be able to carry on working in future I foresee that due to what I’m dealing with I will at some point have stop working very worried about how I’m going to support myself. Had conditions over 20years been to many doctors seen many so called specialists and yet I feel I get pushed away neglected with not a single diagnosis which is what I need. I have an appointment with another so called specialist in ten days time I’m hopeful that it plays out better than it has in the past, I understand that its kind of hidden disability and on the face of it I look healty and strong but can’t be seen is this this debilitating suffering breaking me down and destroying my mental health, have thought about suicide though don’t think I could do it but also know that more think about something like that easier will be to really consider, nice website you have helping people who are suffering not so obvious condition talk and get their worries and troubles out to some
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I’m so sorry you are going through this. It does mess with your mental health a great deal but I’m still here! Now the Menieres is mind over matter for me! I’m deaf, my symptoms are just as bad; I focus on what I CAN do not what I could or should be able to do. I listen (ha) to my body.
If I can offer you any advice; you need an ENT specialist. Really be specific about your symptoms, write it all down… keep a diary. If anything affects your symptoms; sleep, food, drink, weather, exercise, etc.
What does a day for you look like? How does it affect you, any hearing loss? Vertigo? Vomiting?
What happens when it’s bad, what stops you getting out of bed and why? As if your talking to a chocolate fireguard!!
Have the ear infections been confirmed by doctors as such? Inflammation /pus etc? As this is an odd one to me… or just pain! Consider this?
I wish you well, meditation and aromatherapy can be helpful.
Check my “what an attack is really like” page! That should give you an indication of menieres. But from what you have included a doctor would struggle with a diagnosis I think.
Take care. A
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