This was the same day before I put myself through the car wash (as I put it) before painting on my face and forcing a smile… quite unbelievable what we do really… you never know what people are going through behind the mask!
Loving passionate Mother of two trying navigate my way through a new kind of life I find myself in through no fault of my own.
I suffer with bilateral Ménières, on many medications and tried skull surgery to no good outcome. It’s a living hell. I am a retired primary teacher who had a fantastic career.
How do people we Ménières live with this horrific sentence? That is what my site is about... me, my journeys before...during ... now! My coping strategies and not coping...
It’s a rollercoaster, but that’s my life, I never know from one minute I the next how my day will be. Spinny, dizzy, sick, ear pain pressure yes pretty much always, attacks or non. Can I maintain the “I’m ok” face or not.
What I will say, I want to help and support anyone, it’s a lonely and horrible journey. Nobody really understands. Unless you have been there. If I can help one person I will be happy and raise awareness of this debilitating life changing and obliterating condition that is Ménières.
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2 thoughts on “We are STRONG… WE ARE SURVIVORS”
This is the problem with mental health and Hidden illness /disability! (#hiddenillness #suicideprovention)
It’s easier to say I’m fine! Nobody really wants to know. It’s just a passing greeting.
There are the comments like, are you still not well! Where you scream inside…. I AM NOT GOING TO GET WELL!!! Argh!!!
So you don’t get into anything; you just withdraw and don’t speak and your journey gets longer and lonelier.
Well done Ali for putting those pictures on , it takes great strength n grit to do that , to let others see you as you do . Wen I look at you I can see your pain but only sometimes, you usually cover it well . But there are the dark days you don’t let anyone see especially me and your children.
Your my hero and my little girl.
I love you xxx
So proud to be your Mum. I am so very lucky 🍀 .
Ménières Suicide or Survivor 
This is the problem with mental health and Hidden illness /disability! (#hiddenillness #suicideprovention)
It’s easier to say I’m fine! Nobody really wants to know. It’s just a passing greeting.
There are the comments like, are you still not well! Where you scream inside…. I AM NOT GOING TO GET WELL!!! Argh!!!
So you don’t get into anything; you just withdraw and don’t speak and your journey gets longer and lonelier.
This is why AWARENESS is so important… please.
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Well done Ali for putting those pictures on , it takes great strength n grit to do that , to let others see you as you do . Wen I look at you I can see your pain but only sometimes, you usually cover it well . But there are the dark days you don’t let anyone see especially me and your children.
Your my hero and my little girl.
I love you xxx
So proud to be your Mum. I am so very lucky 🍀 .
LikeLike